An 11-year-old girl has forgotten almost everything she had learned after being diagnosed with dementia in childhood.
Molly Ingham was a ‘perfectly healthy’ child until she turned six, starting to lose her eyesight, memory and mobility when she began having seizures.
Eventually she was diagnosed with Batten ‘s disease-a rare form of childhood dementia that robs children of their eyesight, speech and ability to move as well.
It’s unlikely sufferers will make it into adulthood.
“It’s been devastating to watch the most outgoing little girl that could do everything every other six-year-old could do go into this situation,” mum Adele Ingham said.
“It affects short term memory so she won’t take in new things.
“My dad died two and a half years ago and she still wants to go in when we drive past his flat.”
The mum also said last September she started a special school making loads of friends.
Now, she can not recall their names.
“She says she wants to go home when we’re already at home,” Adele said.
“There’s a lot of confusion.
“She used to know every word to every Disney song now she can’t even string a sentence together.”
Her mum also said she can’t see anymore.
“I just bought her a new Olaf toy and she didn’t know what it was until she felt his carrot nose,” Adele said.
“She used to be able to ride scooters, go to the park and on the climbing frames, and everything just started becoming more difficult.
“So she’s in a wheelchair now because she’s got no balance and she’ll fall and hurt herself.
“It’s a form of childhood dementia but there are other things that a typical elderly patient with dementia wouldn’t have.”
Adele worries that she doesn’t have much time left with Molly and hopes to get her treatment, called Taysha Gene Therapy, available in Dallas.
“I might have only a few years left with her and that’s being positive,” she said.
“The treatment won’t bring her eyesight back but it might help her to say the odd sentence instead of the odd word.
”So there’s still hope and a lot of fighting to do but I won’t stop.”